Wednesday, April 29, 2009
We have a new addition-meet 'Belle'
Posted by Grandma's Cookie Jar at 9:04 AM 1 comments
Monday, April 27, 2009
Yard Work! Oh My!
The scalloped brick lining the sidewalk is going on the other side of the front yard. You can't see it in any of the above pictures, but I put in that scalloped brick as a border between the lawn and the rocks. It keeps the grass out of the rocks and the rocks out of the grass!
Posted by Grandma's Cookie Jar at 7:26 PM 1 comments
Thursday, April 23, 2009
Kirsten's Feeling Soooo Much Better!!!
You can't tell too well, but Kirsten is 'smiling' while she is sucking her thumb!
I'm afraid Kirsten will forever suck her thumb. She's been sick for so long. This week has been the 'turn around' point for her. It's been a long 4 months. I love her in pink! She wears that color so well! The shirt is one I bought recently. I bought 2, one in pink and one in lime green. She couldn't take her eyes off the bright green one, so we had to buy both of them! Next time she wears it I will take a picture of her and post it! :o)
Kirsten ate 3 days in a row! Only once each day, but what an improvement! She still sleeps in until 1pm each day, but she's getting better and she's happier and feeling much, much better than a week ago!
Kirsten has 2 days left of her antibiotic. It's supposed to stay with her for 3 weeks when she finishes that last dose. I sure hope she does not get sick any more! We like seeing her happy and well! :o)
Posted by Grandma's Cookie Jar at 4:04 PM 3 comments
Monday, April 20, 2009
Sewing curtains...hmmm
David took this picture with his blackberry. It is a picture of the curtains I made for he and Angela.
I hope to get a clearer picture soon. I was happy to at least see this one! :o)
David works for a furniture manufacturing place. They will have left over cuts of fabric that they can't use. The employees can take whatever they want from their discard pile. David brought home the red fabric in the picture. He asked me if I would make some curtains for their living room. Angela wanted the loops for the curtains to hang rather than the standard ruffle.
The curtains were easy to sew. However, those loops were a challenge! I had to make '40' of them. If I ever see another one, it will be too soon! I am glad that David and Angela love their curtains! They did turnout nice. I am 'not' a professional by any stretch of the imagination.
Posted by Grandma's Cookie Jar at 8:12 AM 2 comments
Wednesday, April 15, 2009
45 DAYS - I Did It! I Did It! Yippee!
Posted by Grandma's Cookie Jar at 8:34 AM 2 comments
Monday, April 13, 2009
Our Sweet Little Kirsten!
This is Kirsten on her '19th' birthday.
She is throwing up sick and 'out of it!'
This was taken on April 10th. Her class made her birthday
cards and a Get Well card. She was feeling a little better.
She had just come home after a CT scan on her sinuses. We
had other appts. and she was pretty much exhausted!
This is her over the weekend and she sleeping sweetly and peacefully.
This was taken over the weekend and she was feeling better
and playing with her toys and had actually made some clutter!
This was taken today, April 13th, after having another
CT Scan on her abdomen. She has gall stones. We hope
they are behaving!
Posted by Grandma's Cookie Jar at 1:30 PM 0 comments
Wednesday, April 1, 2009
Happy 19th Birthday Kirsten!
April 2, 2009 - HAPPY 19th BIRTHDAY! KIRSTEN KIMBERLY ANN GUPTILL
The smilebox below is our tribute to our daughter Kirsten for her 19th birthday!
It's hard to believe that 19 years have passed! In some ways it seems not that long ago. Then there are times when it seems like it was forever ago. A lot has taken place in her 19 years.
Kirsten's life has been an adventure! We have grown a lot in taking care of her. She is a sweet princess. Why we were lucky enough to be chosen to have her is beyond me. We were green as green in taking care of a special needs little girl. Her family welcomed her with open arms. They love her tenderly and warmly.
Kirsten is a full trisomy 18-Edwards Syndrome and one of a very few living in the USA. Kirsten was born 7 weeks premature and was in the NICU for 3 weeks and then in the intermediate nursery for 3 more weeks and then came home. At birth she weighed 4 lbs. 2oz. and was 17 inches long. When she came home at 6 weeks she weighed 1/2 an ounce under 5 pounds. At one year, she weighed 7-1/2 pounds. At two years, she weighed 10 pounds. Those first 2-1/2 years were quite a struggle. We almost lost her 3 different times. Kirsten fought hard! She had congestive heart failure, a stroke, pneumonia twice. Not fun times. At age 3 she was the weight and size of an 18-month old. We literally had a baby for 3 years!
Kirsten had corrective eye surgery when she was 5. Both of her eyes were crossed. She had C-Diff really bad and was hospitalized 6 times over one year in 2002. She had a G-tube placed to feed her nourishment. It's been 7 years and she still has it. Five years ago she had her first VNS implant. Vagus Nerve Stimulator for her Myoclonic seizures. She is now on her 3rd battery. She had drop seizures so bad that they debilitated her and she lost over 1/3 of her functions. Two years ago Kirsten had brain surgery, a corpus callosotomy, and no longer has drop seizures. Unfortunately the functions she lost will never come back. Once she walked with a walker and independently around furniture and rode a special trike. Those are now in her past.
Kirsten is so courageous! She never whines or complains. She takes illnesses as if they were just part of life. She is such an example to her family. She has such strength. Kirsten loves to laugh! She has her 'silly' moments! She has giggle jags and we have to tell her, "Kirsten come up for air!" Kirsten has the sweetest smiles! We love to see her smile! She has a very 'special spirit.' People are always drawn to her. As her mom I cannot stand to be away from her for very long. If I am running errands while she is at home with her papa, I can hardly wait to kiss and hug her when I get home. She gets bushels of kisses and hugs on a daily basis.
God allowed her to come to us and she has taught us many things. She is a gift from Him. We tell her that when she is ready to 'go home' to please 'put in a good word for us!' :o) Right! She has her salvation assured. We have to 'work out ours!'
Here's to you Kirsten - a sweet daughter of God. Our little princess! May He always bless you and keep you close in our hearts forever!
WE LOVE YOU SOOOOO MUCH! XOXOXOXOXOXOXOXOXOXOXOXOXO
Posted by Grandma's Cookie Jar at 10:21 PM 3 comments